Thursday, June 24, 2004

Pia's Story

Please Spread the Word

Until June 2002, Pia Awal had always been perfectly healthy. Then just days after her 27th birthday, she was suddenly diagnosed with Acute Myelogenous Leukemia (AML).

AML is a cancer of the blood. It is a disease where immature white blood cells reproduce at an alarming rate. Unable to fight infection through the production of healthy blood cells, the body suffers from intense fatigue, bone pain, nausea, low platelet count (leading to compromised clotting ability), and low immunity.

An inspiration to all who know her—her friends, family, and her students at Manhattan’s prestigious Dalton School where she taught 2nd grade for many years—Pia fought the cancer with fierce determination, a sense of humor, and a resilient spirit.


Pictured: Pia with Assistant Editor of Glamor Magazine, Erin Zammett. This image appeared in Glamor Magazine which published Erin's diary of her experience dealing with leukemia.

In March 2003, after surviving several grueling rounds of chemotherapy, Pia was declared cancer-free. Happier times came about with a recent proposal of marriage. The wedding of Pia and Tim is set for October 10, 2004.
On June 17, following a routine visit to Memorial Sloan Kettering Cancer Center, Pia learned that the cancer is back. Doctors say that her best chance for surviving this relapse is an aggressive round of chemotherapy, followed by a stem-cell transplant. Healthy stem-cells from donor blood will be inserted into her body to regenerate healthy blood cells. This, after her own blood cells have been destroyed by chemotherapy. It is not an easy road.

To date, Pia has been unable to find a related match for the stem-call transplant. At present, only less than 0.1 % of Indian population is registered with the Worldwide Bone Marrow Registry, with only 5,000 people registered in USA. Hence, whenever an Indian person needs a stem-cell or bone marrow transplant, it becomes extremely difficult to find the right match for him or her.

Pia’s friends and family, with the help of SAMAR (South Asian Marrow Association of Recruiters) are conducting several Blood Test Drives over the next two weeks in Manhattan, Queens, and New Jersey to help find a match for her. All it takes is someone to be of South Asian (Indian/Pakistani/Bangladeshi) origin, between 18-61 years old, and in generally good health.

The registration process is harmless and involves only having a small amount of blood drawn. The blood is HLA typed for a match and if successful, the donor will be asked to donate stem cells extracted from their blood, to save Pia’s life. All donors will be entered into the National Registry where they may be called upon to help someone else, if not Pia.

We make this appeal to each of you to save a life that holds hope and promise for the future. Please attend one of the drives being conducted in your area and get tested. You can also get HLA tested at your local Blood Center or American Red Cross.

It is never too early, but it can be too late to wait. It only takes one to make a match. For additional information, please email Friends of Pia or call one of the numbers listed below.

Blood Test Drives for Pia will take place at five convenient locations in Manhattan, New Jersey, and Queens from July 3 to July 18, 2004.

MANHATTAN

Tuesday July 6th, 10am – 4pm
Thursday July 8th, 3pm - 8pm
All Souls Church Chapel
1157 Lexington Avenue (bet. 79-80th St.)
Info: (212) 737-2469 or (646) 262-7032


QUEENS

Thursday July 8th, 2pm – 4pm
Saturday July 10th , 12 noon – 4pm
SAMAR
55-13 96th Street, Flushing, NY 11368
Info: (718) 592-0821
or click here to send e-mail


NEW JERSEY

Saturday July 3rd, 10 am – 4pm
Sunday July 4th, 10am – 4pm
FOKANA
Garden State Convention & Exhibit Center
Somerset, NJ 08873
Info: (718) 592-0821
or click here to send e-mail


Saturday July 10th, 12 noon – 7 pm
Sunday July 11th, 12 noon – 7pm
INDIA MELA
Soccer Center, 300 Memorial Drive, Somerset, NJ 08873
Info: (718) 592-0821
or click here to send e-mail


Sunday July 18th, 10:30 am – 2:30 pm
SADHU VASWANI CENTER
494 Durie Ave.
Closter, NJ 07627
Info: (201) 658-3829



Please Spread the Word

64 Comments:

Anonymous Anonymous said...

is there a place in philadelphia where possible donors can be tested?... there are a lot of south asians there, myself included.

God bless; my prayers are with you.

July 1, 2004 at 6:59 PM  
Anonymous Anonymous said...

Just seen your story on WB11. Stay strong and I wish you will find a donor soon...

July 2, 2004 at 8:15 PM  
Anonymous Anonymous said...

There is a HUGE Indian community in Washington, DC and Northern Virginia! Please consider contacting the Washington Hospital Center, Georgetown and George Washington Universities regarding donor drives.

My best to Pia. (She's in great hands at MSKCC!)

July 2, 2004 at 8:21 PM  
Anonymous Anonymous said...

There is decent Indian community in Connecticut
In Naugatuck Area, Please see if the blood test drive can be arrange in that area.
Pia,
Stay put, you will find the right match. All the best wishes.

July 2, 2004 at 8:37 PM  
Anonymous Anonymous said...

Hi Pia,
I'm also a cancer survivor of 10 years, You may not remember me but I also am a teacher in a different division. I am partly (one half) Vietnamese and 1/2 European American. Do you think that is too farfetched for a match? As a cancer survivor will they consider my blood? I'll try to find these answers. Sending you my love and support. Also sending you best vibes for a full recovery soon! , Lotus

July 4, 2004 at 3:51 AM  
Anonymous Anonymous said...

Pia,

Please ask your doctors about using cord blood cells.

I believe the procedure was used in Singapore a couple years ago, with the announcement being made just last week.

The link to the story is below:

http://straitstimes.asia1.com.sg/topstories/story/0,4386,259142,00.html

Kind regards,

Harveen (Singapore)

July 4, 2004 at 11:14 AM  
Blogger AD said...

Pia, I hope you find a match. We (my wife and I) are registered donors so if they have not done search against our names, please do so. Good luck. If we are match, we would love to donate.

Thanks. Anil & Nisha Dalia, NJ

July 9, 2004 at 1:27 PM  
Anonymous Anonymous said...

hello pia
we at tri state sikh cultural society looking forward for donors registry campaign .Life is so mysterious
that one never knows. pray to god . as a sikh the god is in you. the one who gave pain will also find the ways to cure it.keep faith in god.

may waheguru be with you in happiness and sorrowness.
charanjit singh.
pittsburgh.

July 14, 2004 at 7:36 AM  
Anonymous Anonymous said...

Hey Pia,

I am a good friend of your sister, I just wanted to let you know that after hearing about your story we are organizing a nation wide stem cell drive. The Indian promoters through the country are trying to set up dates and venues in their respective areas in hopes to get you a match... in the mean time stay strong and spirited, we’ll do the rest :)

Amit Dharmani (Detroit, MI)

July 14, 2004 at 10:27 AM  
Anonymous Anonymous said...

Hi Pia. Im Rajendra Nalam, from your class in RV - this is to let you know that my good wishes/ prayers are with you. Hope you find a match soon. God bless. If any efforts are to be made in India, i can be reached at rajnalam@yahoo.com.

July 15, 2004 at 3:39 AM  
Anonymous Anonymous said...

Dear Pia Awal,

Very sad to learn about your situation. I don't know if you remember me but I was your Physics teacher in Rishi Valley School. I feel helpless as there is not much I can do sitting here in Bangalore.

I wish you get timely help and complete recovery.

Cheers,

Dr.S.N.Gananath
sngananath@yahoo.com

July 15, 2004 at 8:00 AM  
Blogger tarasharma said...

Dearest Pia,

I am so sorry to hear about your situation and am really praying and believe that you will find a match sooon and be fit as a fiddle in no time. I am Tara, Namrita Sharma from your class in RV's sister. I remember u very vividly so hope u remember who I am too! If there is any matching being done in India I am extremely keen to help. My email is sharma_tara@hotmail.com. Once agian, all my thoughts, wishes and prayers are with u and I am sure u will be fine very sooon.

Lots of Love,
Tara

July 18, 2004 at 4:34 AM  
Blogger tarasharma said...

Dearest Pia,

I am so sorry to hear about your situation and am really praying and believe that you will find a match sooon and be fit as a fiddle in no time. I am Tara, Namrita Sharma from your class in RV's sister. I remember u very vividly so hope u remember who I am too! If there is any matching being done in India I am extremely keen to help. My email is sharma_tara@hotmail.com. Once agian, all my thoughts, wishes and prayers are with u and I am sure u will be fine very sooon.

Lots of Love,
Tara

July 18, 2004 at 4:34 AM  
Anonymous Anonymous said...

My dear Pia,

With all the love and effort made from near and far by so many people who care, I am sure that you will be able to get through this struggle and put it past you.I am too far away to do anything but I have sent your details to people who, I hope, can.Thinking of you. Bubla

July 18, 2004 at 8:45 PM  
Anonymous Anonymous said...

Hi Pia
God Is with you, my name is nadia Im spanish and Ill be more than happy to see if my blood can be the match for you, we are all the same in gods eyes, stay strong and hang in there, your in this world for a reason, you will make it through dont lose faith,God Bless you

Love
Nadia

July 20, 2004 at 5:38 AM  
Anonymous Anonymous said...

Dear Pia,
Hi! It's Linda Upadhyaya writing you a little love note! I plan to be a donor for you (even though I'm american!), and I'm passing the word around to as many people I know in order to help you. I also work as a psych crisis clinician @ Midstate Medical Center, Meriden, Ct., and I'm trying to see if there's anything the hospital can do to help you. I think about you every day, and have no doubt that you'll be just FINE. Despite not having seen you for some years, you are like a little sister to me (remember, I knew you when you were a teeny weeny little girl - now a beautiful woman). Keep up that positive attitude, and by the way, girl, congratulations on your engagement! Lucky man. love, Linda

July 21, 2004 at 6:06 AM  
Blogger Sriram said...

Hi Pia

Our prayers are with you for a full recovery from your illness.

I thought that i would share some information that i gathered last weekend in regard to your situation.

I had a friend of a friend for whom there was a huge drive in India and the US. In India the drive was held in Tata Memorial, Bombay Hospital, and KEM Hosptial. All the information for the drive in the US is with SAMAR.
Here are some names of doctors who were contacted by my friend during the time his friend was ill and they were looking for donors. These doctors would be of great help.

1) Dr. Mammen Chandy – HoD Hematology, Christian Medical College, Vellore.
mammen@cmcvellore.ac.in , http://cmch-vellore.edu/

2) Dr. Undevia, Cancer Research Institute, Mumbai. http://www.tatamemorialcentre.com/ACTREC/cri.htm

3) Dr. Latha Jagannathan , lathajagu@hotmail.com in Bangalore. She is part of the TTK trust and she has a few people on her list to look for a match.

http://www.thalassaemia.org.cy/mydata%5CIndia.pdf This link has information on Dr. Latha Jagannathan and Dr. Mammen Chandy.

4) Dr. N.K. Mehra from AIIMS in New Delhi contact detail Fax: +91-11-6862663
http://lrsitbrd.nic.in/publication/A%20case%20of%20pulmonary%20tuberculosis%20with%20pancytopenia.pdf

Contact URL
http://www.aiims.ac.in/aiims/departments/histo-comp/transplant&immunogenetics.htm

I hope this information is of help.

Wishing you a speedy and full recovery. Fight on!
Love,
Sriram & Anita

July 26, 2004 at 8:22 AM  
Blogger Sriram said...

Pia:

Regarding my last post, if there is any other information that i can provide from India (i know a few people who could help out getting information), please dont hesitate to let me know

ssivarama007@yahoo.com
914-686-7721
646-644-6722

Thanks
Sriram & Anita

July 26, 2004 at 9:02 AM  
Anonymous Anonymous said...

Hi Pia
I live in Wa but i still plan to somehow to be a doner , and i will help in any way possible , take care u'll b just fine , i'm sure about that , take care honey

August 2, 2004 at 12:01 AM  
Blogger Trupti said...

Dear Pia, Hi! I live in the Chicagio area and heard about your illness when visiting St. Louis. I am a director of a local east Indian dance school here. My students really wanted to help by participating and testiong for your cause, however, the students range from age 10-17 or do not meet requirments. We as a group were wondering if there is any other way that we can help? Please inform. thanks!

August 9, 2004 at 8:30 AM  
Blogger Trupti said...

Dear Pia, Hi! I live in the Chicagio area and heard about your illness when visiting St. Louis. I am a director of a local east Indian dance school here. My students really wanted to help by participating and testiong for your cause, however, the students range from age 10-17 or do not meet requirments. We as a group were wondering if there is any other way that we can help? Please inform. thanks!

tap332004@yahoo.com

August 9, 2004 at 8:30 AM  
Anonymous Anonymous said...

Dear Pia, Please stay stronge. You are blessed with a wonderful family anf friends. I will contact my daughter and have her put out your story to her Asian friends. Many of them have families here and in their native countries. With all the support you have I pray your donor is found.

August 10, 2004 at 3:44 PM  
Anonymous Anonymous said...

Hi Pia,
I am from Chicago and I heard about your story in one of the local news channels. I really wanted to help out but I don't meet the criterias for donation. I am very sorry for that. I hope you find a match soon. You will definitely be in my prayers. Hang in there.

August 23, 2004 at 1:16 PM  
Blogger Aparna said...

Question: If i have already participated in a SAMAR drive and am part of the donor bank is it ok? Or is this different? Thank you! You can reply to me at akothary@umd.edu

My prayers are with you.

September 14, 2004 at 12:55 PM  
Anonymous Anonymous said...

Dear Pia,

We just came to know about your situation through 'Little India'. We are in Coatesville near Philly and would like to know where in PA or NJ can we come for a potential donor testing.
Just hang in there and have faith in God.

sunnymeenu@hotmail.com

October 24, 2004 at 12:16 PM  
Anonymous Anonymous said...

hi pia....
i just read your story in the rishi valley school alumni website....i'm really sorry to hear about your situation....i studied in rv too....but much after u left rv....keep faith in yourself and god....HE'll surely help you....i plan to be a donor for u....i am 18 yrs old...indian....hopefully,i can be of some help to u....i am also willing to make any necessary arrangements that u are willing to carry out in india...u can contact me at shreya-primadonna@hotmail.com
take care....bye...
luv,
shreya

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